DBS See Different Profile – Attorney Rachel Ebert


I was diagnosed with Stargardt's disease when I was 17 About two months or so before my official diagnosis was when I realized that I couldn't see anything anymore

It felt really it in a matter of a few weeks where I was sitting in my classroom in high school and I couldn't see the board And, I remember being able to see it the day before or the week before, I wasn't really sure Then I turned 17, and just a few months later is when I got my full diagnosis after I went to a few different doctors and had different testing Personally at 17, you don't want anything to be wrong with you There's, you know, this image that you have to uphold at 17, and everything's embarrassing

So it was emotionally sort of a rollercoaster at first Professionally speaking, I've always been goal-oriented, so when I had that obstacle come into play as a teenager, even though I was in my late teens, it really just sort of catapulted my drive to succeed a little bit more I'm interested in always achieving the next goal so having Stargardt's and low vision along the way just made my goals that much more difficult to reach, but made the journey more intentional, more successful I use assistive technology all day, every day, I always tell people that I work with, I can do the same thing that other people do, I just need equipment to do it I bring a portable CCTV with me almost everywhere I go, especially the court room

In my office, I'm lucky enough to have some stationary equipment I have software on my computer I have my CCTV in my office that I can access and read documents with If I don't have access to any sort of magnification equipment, I'll just have to tell people or opposing counsel or whoever it is that I'll be able to go back to my office or back to some location and read through the material they've given me and then get back to them I would always tell my law school professors, it's not my brain, it's my eyes

So if you can think through whatever it is you want to do, a visual impairment or blindness or some sort of other physical disability isn't and shouldn't stop you The first goal is to set your mind to what it is you want to do and then figure out with your low vision your disability or your blindness how to do it It's going to look different than everyone else; it's going to feel different than everyone else Everyone else is going to realize what you're doing is different, but you're gonna have the same goals and you can achieve those same things that people without disabilities do We have all kinds of technology and support through the Division of Blind Services, through all other kinds of agencies, and people that are just willing to help

And a physical disability, it can't — shouldn't stop you If you if you can do it in your head, and then you can do it in your life

Source: Youtube


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AJ

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